Having a label for your condition is a gratifying and important step, congratulations on finally figuring that out. Once I had a label for the source of my pain and problems, I felt I crossed a mental threshold where I could put it in a box and contain it. It was no longer an overwhelming question mark floating around. I hope this is a first step in many more improvements for you!

Ablations are definitely not a cure all, but they help break the pain cycle. Before I had my ablations, my pain would persist even when resting, eg lying down - now my muscles are actually able to catch a break. This gives me the chance to work on exercises and other long term investments into my health.

If you’re in the US, you’ll probably undergo trial shots first, where they inject you with lidocaine or some other painkiller. You’ll be able to tell right away if it helps. I hope you have the opportunity to give that a try!

Tiring is a great word for it. Fighting for people to listen takes so much emotional capital, it’s so sad that it has to be that way. But once you find a good specialist, it will all be worth it!

Definitely look for other doctors! I went to a rheumatologist and they ran blood tests, found nothing, and said I had fibromyalgia. I was not amused. There are actual doctors who study pain, see if you can find one!

That’s crazy :(. Have they thought about trying ablations? I’ve had great success with them.

Thank you! I appreciate all the kind messages you leave on this forum